Wednesday, October 28, 2009

Welcome to Life With Lyme!

I am 28. I am Female. I have Lyme.

Just over a year and a half ago I was diagnosed with Lyme Disease. Both my mother and sister also have Lyme. I contracted the disease from mother who was bitten by a tick when she was 6 months pregnant with me. I am now almost 28 years old and am finally ready to deal with the fact that I have Lyme.

I have had a myriad of heath problems from the time I was born. To date my list of health problems includes but is not limited to the following: Celiac Disease, Bi Polar Disorder, learning disabilities, skin problems, muscle spasms, hair loss, reproductive problems, joint pain, muscle fatigue, and chronic inflammation.

Although I have been given many diagnoses, labels, and suggestions and over the years there was something about them that never felt right. The other problems was that doctors also told me that there was nothing wrong with me and it was all in my head.

I was so grateful when I finally found a doctor who would take me seriously. To hear that there was actually a name for what I had was such a relief. At the same time though, it was also frightening.

As I tried to make my way through the literature on Lyme I became overwhelmed, both at the severity of the disease and at the contradictory information about Lyme and it's treatment. I have come to realize that I need to educate myself more and in turn help to educate others . When I have tried to explain this disease to others I find myself coming up short. I can not explain or articulate how Lyme operates. I can not seem to be able to come up with the medical terminology to explain what is happening to my body. I am even finding it hard to explain when asked how it affects me on a day to day basis since I have no reference as to what a healthy body feels like.

The goal of my blog is to provide information and educate people who have Lyme or for people who know someone with Lyme.

Now my mission is to find out more. More about the disease. More about the medical terminology and jargon. More about treatment. And hopefully, in writing this blog, more about me.



2 comments:

  1. Hi!
    I too am a Caadian with Lyme disease. Isn't it lovely living in a country that claims that there is no Lyme disease here. I am so glad that you have found a doctor who is taking you seriously. That in itself is quite an accomplishmant.
    Have you checked out http://www.canlyme.com ? lots of friendly Lymies there and it is also good source of information.A friend of mine in the UK has a super blog ,realy a gardening blog but she has lots of links to Lyme information down the side of the page. http://joanne-orangecottages.blogspot.com/
    Just remember You are not alone in this fight

    Alison from Alberta

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  2. Hi there, I got your comment just now. If for some reason I fail to get back to you in a few days, leave another comment to remind me. :o)

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